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Coping with family members and friends
Not only do parents have to deal with their own emotions but also they have to handle
reaction of their family and friends. Sometimes family members can say things to make
situation worse, questioning your prenatal care, dismissing
problem as not as severe as you are telling them, or giving you unwanted advice. You may hear things like "well you can just get him glasses", or "you know they have surgeries for that". Even as you try to educate them on
subject, often times they have their own beliefs. Sometimes it is best to keep
discussions to a minimum if they are not supportive or helpful to you.
What to do next
Once you receive your diagnosis, you may be wondering what you can do. Talk to your pediatrician about getting services with a vision therapist. This is often available through Early Intervention programs. Ask your pediatrician whom to contact for more information on this. Read as much as you can on
subject. Knowledge about your child's vision condition will make you feel less helpless. Find a support group. If you can't find one locally, you can find one online. There are many support groups available for specific vision disorders.
Helpful links:
Albinism- NOAH http://www.albinism.org The National Organization for Albinism and Hypopigmentation
Nystagmus - American Nystagmus Network http://www.nystagmus.org
Optic Nerve Hypoplasia/ Septo Optic Dysplasia - Focus Families http://www.focusfamiles.org
Retinopathy of Prematurely The Association for Retinopathy of Prematurity and Related Diseases http://www.ropard.org
Strabismus http://www.strabismus.org
Blindness and low vision http://www.blindness.org
National Association for Parents of Children with Visual Impairments http://www.spedex.com/napvi/

Patty Hone is the mom of a visually impaired child. She is also the owner of Justmommies.com - pregnancy and parenting message boards for moms. Please visit Justmommies message board for Visually Impaired Children for more support for parenting a visually impaired child. http://www.justmommies.com