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She resolved to do something about it out of
deep kindness of her heart, even though she had no experience in fighting this type of state sanctioned medical mistreatment of a prisoner. Mrs. Julie Ehlers launched a letter and Internet campaign, creating a Website for me to call attention to my plight and to seek help from other concerned people to force
IDOC to provide me with proper medical treatment for this deadly liver disease. See http://www.justice4jimmykinslow.homestead.com/index.html.
Another group heard her plea for assistance, called Surviving The System, picked up my story and also printed it on their Website at: http://www.survivingthesystem.com/kinslow jimmy.htm. Another lovely lady responded. C.J.Codega from
group Reaching Beyond The Walls. Along with some others; (LesleY581Aaol.com; Jeff Dicks Medical Coalition). Their aim was to pressure
IDOC and let them know they would NOT be allowed to deny medical treatment to me outside of public scrutiny.
Bowing to
pressure from these people,
IDOC relented and transferred me back to
Stateville C.C. on December 13, 2001, where I could be sent for an evaluation by a proper specialist at
University of Illinois - Chicago, Liver/ Hematology Clinic.
The IDOC and another prison HMO group, ADDUS Healthcare Inc., had by this time hired a new, more compliant and obedient Medical Director at
Stateville C.C.. Dr. Kevin Smith only grudgingly agreed to arrange my outside medical evaluation, delaying three months until March 14, 2002. I was seen by Dr. Wiley, a liver disease specialist. She recommended immediate re treatment with
newly approved PEG Interferon/Rebetol (Ribivarin) and further asked that a pretreatment ultrasound and liver biopsy be performed. Also a CT scan of my entire abdominal area, prior to beginning new treatments.
Dr. Kevin Smith delayed seeing me in connection with
U.I.C. visit and medical recommendations until April 24, 2002. At this time he denied
pre treatment ultrasound, liver biopsy and CT Scan of my abdomen (because of
persistent stomach/intestinal infection I was suffering from, untreated to that point). He grudgingly approved
recommended re treatment with PEG Interferon/REBETOL. Dr. Smith made it clear he was personally offended by
outside pressure I had brought to bear, thanks to my outside help. He said that I would be put on a waiting list to receive
medications when they could get them - that I did not deserve special treatment. Special life threatening treatment was in fact what I was about to endure for
next year and beyond.
They did not have
medications until November. HCV medical treatments with I:IEG Interferon/Rebetol started on November 4, 2002. At
start of
treatments, my HCV viral load levels were over 7,000,000 I U/ml, and Liver Function (AST/ALT) Levels were abnormal, indicating ongoing destruction of liver cells.
The treatments began really great, with a surprisingly mild level of side effects from
chemotherapy (cancer fighting) medication, PEG Interferon. Within eight weeks my liver function levels had stabilized back into normal. My HCV viral load levels had fallen to 53,800 IU/ml. By April 23, 2003, levels had fallen to an amazing 154 IU/ml. I was close to possibly being cured from this terrible and insidious liver/blood disease, having this treacherous virus eliminated from my blood and internal organs.
Then a horrific series of events began to unfold in a malicious and deliberate manner, resulting in
obvious sabotage of
amazingly successful HCV treatments. This required
early termination of
treatments before
virus was completely eliminated, allowing
HCV time to mutate and return in a more virulent, aggressive, destructive form.
This series of events began November 25, 2002, when I requested Nurse Susie Viscum,
RN overseeing my weekly injections of PEG Interferon, call
Medical Director, Dr. Smith. He was supposed to be personally supervising my treatments so I could report severe side effects and/or drug interactions I was having after taking
antihistamine medication Periactin. He had prescribed this for me in response to
severe itching I was experiencing as a side effect of
HCV medications. (Continued as Part 2.)
(1500 words)

Freelance writer published on websites and newspapers. edhowes@hotmail.com justanotherview.com