Ben is Coping with Huntington's Disease

Written by Lynda Appell


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There are only pallitive treatments forrepparttar symptoms. Psychotropics forrepparttar 115890 mental disturbances. I know there are some anti-alzheimer drugs such as Aricept, Tacrin, Hydergine. I don't know if they work for Huntington's Disease. There is a study going on in Wash. D.C studying an anti-parkinson's medication. Cannibis, ie, manijuana has been seriously considered to help withrepparttar 115891 involuntary movements. I think its terribly unfair and cruel to not have legalized medical marijuana for patients who it would do most good. Many people with terminal illnessess who are suffering with excruiating pain sure could userepparttar 115892 pain relief. The least they could have done for them to have something help relieve their misery. Also for people with HD cannibis may help with their muscle spasms and other involuntary movements. Lastly personw with HIV/AIDS, and non-terminal stage cancer grass may increase their appetite. thereby increasing their chance for survival. If anyone knows of any experimental studies, please let me know. My male friend and I will be greatly grateful. Thank you For more information, support please contact your local Huntington Disease Society of America. Web site onrepparttar 115893 Internet. Note: This article replaces my earlier HD article. "A Dear Male Friend Has Huntingtons. Typed it Huntongton. typo obviously. I also have an article on how a common antibiotic-a tetracycline may be helpful in treating this dreaded disease. Its at http://www.writtenbyme.com/content/70095

Disabled disability activist for over twelve years with local Greater Phila, PA disability organizations.


My Views on Patient's Rights

Written by Lynda Appell


Continued from page 1

3. Request changes in treatment or services.

4. Refuse treatment or services if one truly believes one can not tolerate such treatment.

5. If surgery is recommend to knowrepparttar risks,repparttar 115889 benefits and if there are any alternative treatments to surgery.

6. Knowrepparttar 115890 name,repparttar 115891 reason for taking, possible side effects, adverse reactions, when to callrepparttar 115892 doctor and how to take medication.

7. Refuse to take prescription medicines if you truly feel you can not tolerate them and ask about alternatives if any.

8. Have your family involved or not.

9. No participation in experimental treatment unless permitted by you and only with full disclosure of risks and benefits.

10. No verbal, physical abuse, harsh, unfair treatment.

11. To have complaints heard, a quick response and no mistreatment as a result of such complaint. This especially applies to HMOs.

12. File a grievance if complaint not resolved to one's satisfaction.

13. Review hospital, health records and decide who can see them.

14. All rights of being of being a citizen of what ever country you are f rom should be upheld.

Well that's it. Now it's your turn to let me know what you think.

Disabled disability activist for over twelve years in the greater Phila. area for various disability rights agencies.


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